Patient Advocacy Initiative staff speak on Notre Dame’s Rare Disease Day event and impact for the rare disease community.

Takeda made it rain zebras at a Boston Celtics game Friday. The stunt saw 100 toy zebras parachute from the arena’s rafters ...

As we observe Rare Disease Day today, let us take a look at seven drugs poised to be approved to address rare diseases in ...

The Permanent Council of the Organization of American States (OAS) will hold two meetings on Wednesday, March 5, in the Simón ...

This last week of February marks Rare Disease Day. This day aims to raise awareness of rare diseases and improve access to ...

Zevra used the awareness day to roll out the “Learn NPC, Read Between the Signs” disease awareness campaign. The biotech won ...

For the first time, Hospital Kuala Lumpur (HKL) is proudly hosting the annual Rare Disease Day 2025 celebration to raise ...

MUHIMBILI National Hospital (MNH) executive director, Prof Mohamed Janabi has emphasised the need for greater public awareness on rare diseases to help communities understand the challenges faced by ...

Did you know that one out of every ten Americans has a rare disease? That's why Rare Disease Day is so important to so many ...

Williams, who has performed the National Anthem at baseball stadiums as part of Boehringer Ingelheim’s Breathless campaign, ...

Several rare disease patient populations received their first-ever FDA-approved drug since Rare Disease Day last year, ...

Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In ...