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  1. National Organization for Rare Disorders | NORD

    Oct 21, 2025 · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best …

  2. List of Rare Diseases | A-Z Database | NORD

    What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease …

  3. Financial Assistance For Patients With Rare Diseases | NORD

    NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already …

  4. Centers of Excellence - National Organization for Rare Disorders

    NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare …

  5. About Us - National Organization for Rare Disorders

    NORD was the first national nonprofit to represent all individuals and families affected by rare disease. Today we’re the only organization working at the intersection of care, research, …

  6. Rare Diseases Support, Resources & Help | NORD

    Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific …

  7. Rare Disease Research Grant Program | NORD

    Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these …

  8. What You Should Know About Undiagnosed Rare Diseases | NORD

    NORD is often contacted by people seeking help for an undiagnosed medical condition. Below are answers to frequently asked questions from patients, families, and caregivers.

  9. Rare Disease News - National Organization for Rare Disorders

    Aug 21, 2025 · The NORD Rare Disease Scientific Symposium brought together a dynamic community of rare disease clinicians, researchers, and thought leaders for an unforgettable …

  10. Mesenteric Panniculitis - Symptoms, Causes, Treatment | NORD

    Mar 4, 2024 · Learn about Mesenteric Panniculitis, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find