Meet Maddie, the Children’s Mercy patient battling Angelman syndrome who exudes positivity
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One of the hardest—and least talked about—realities for families living with Angelman syndrome is long-term care.#internationalangelmanday #angelmansyndrome #AngelmanSyndromeAwareness
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Angelman syndrome is a rare disorder that affects chromosome 15, resulting in intellectual and developmental delay. Common signs and symptoms usually appear in early childhood but despite these symptoms, people with Angelman syndrome have an overall happy and excitable demeanor. #InternationalAngelmanDay #angelmanday2024 | Angelman Syndrome Foundation
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#AngelmanSyndrome #天使綜合症 #Angelmansyndromeawareness One of the symptoms that people with AS lives with is being non-verbal, it might arguably be one of tougher symptoms to live with because as caretakers we sometimes struggle to understand what he wants, or if he’s sick or in pain. That being said, Asher doesn’t need words to say that he loves someone, or if he’s happy or sad. It’s not the usual ways that we neurotypical people communicate, but he makes sure we understand that he loves us, somet
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