Doctors told me there were zero treatments for my tumor disease. And technically… they weren’t wrong. 😩 The medication I’m on wasn’t even created for Maffucci or Ollier’s. It’s repurposed, based on what we know about my tumor’s gene mutation because sometimes the thing that saves you wasn’t made for you at all. That’s why I admire people like Dr. David Fajgenbaum @dfajgenbaum so deeply. He was told he was 💀 from a rare autoinflammatory condition, with no options left, so he dug into research h
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Doctors told me there were zero treatments for my tumor disease. …
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