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A Thousand Years
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fragilex.org.uk
About Fragile X Syndrome | Fragile X Society | UK
Support and guidance on Fragile X syndrome, the most common known inherited cause of learning disabilities. Find out more information today.
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Fragile X Genetic Testing | Fragile X Society | UK
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Fragile X is a group of conditions: Fragile X syndrome, Fragile X-associated tremor/ataxia syndrome (FXTAS), Fragile X-associated primary ovarian insufficiency (FXPOI), and more emerging premutation carrier issues we are just learning about and passed through generations, often unknowingly. https://hubs.ly/H0RyK0J0 | The National Fragile X Foundation
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Fragile X is a group of conditions: Fragile X syndrome, Fragile X-associated tremor/ataxia syndrome (FXTAS), Fragile X-associated primary ovarian insufficiency (FXPOI), and more emerging premutation carrier issues we are just learning about and passed through generations, often unknowingly. https://hubs.ly/H0RyK0J0 | The National Fragile X Foundation
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Exciting news! We just released a new 90-second animated video that breaks down "What Is Fragile X?" 🧬 This is the first of four engaging whiteboard videos aimed at raising awareness and educating about Fragile X Syndrome, the premutation, and its associated conditions. Whether you're a self-advocate, family member, caregiver, educator, or health professional, this video is for you. Check it out and share with someone who could benefit from learning more about Fragile X. Together, we can spread
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Our Fragile X Awareness cards can be used by self-advocates, parents, siblings, grandparents, and caregivers to help spread Fragile X awareness and provide important information during an emergency, especially when a caregiver isn't available or someone in authority needs to "hear" from the self-advocate themselves. We have a new, customizable emergency card you can add contact information, medications, and change behaviors. Go to our Awareness Month page to download the cards or access the Canv
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Fragile X - associated tremor/ataxia syndrome (FXTAS) causes "Parkinsonian like" symptoms and it occurs more commonly in male premutation carriers than females. Learn more: https://hubs.ly/H0SchvX0. #FragileX | The National Fragile X Foundation
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Families from the National Fragile X Foundation rang the opening bell at the NYSE today to raise awareness of Fragile X. Fragile X is the most common inherited cause of intellectual disability and autism. Your donation will provide support for families and research towards better treatments and a cure. | The National Fragile X Foundation
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Before someone is diagnosed with Fragile X syndrome, all of the signs are there, but it can take a while to see Fragile X. If your child has unexplained developmental delays, ask about a simple blood test to confirm or rule out Fragile X. Because it is a genetic disorder, knowing is important not only to your child but to past and future generations. Learn more about testing at https://hubs.ly/H0t1Bmj0. | The National Fragile X Foundation
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🧬 How is Fragile X Syndrome Inherited? �It’s one of the first - and most important - questions families ask after a diagnosis. In just two minutes, we break down the basics. Understanding genetics can feel overwhelming, especially when it affects the people you love. Whether you’re newly diagnosed or supporting someone who is, this is a must-watch. ��#fragilex #fragilexawareness | The National Fragile X Foundation
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