One year ago, the LifeArc Centre for Rare Mitochondrial Diseases was created to help tackle some of the biggest challenges in mitochondrial disease. 🧪 Slow diagnosis 📉 Difficulties tracking how the condition changes over time 🧫 Lack of tests to help show whether a potential treatment is working ❌ No cures We’re proud to support this centre, which brings together experts and people affected by these conditions to improve diagnosis and speed up the search for new treatments. 🎥 Hear from the re

Mitochondrial Disease

The @fda just denied the ONLY treatment option for my daughter’s rare, life-limiting mitochondrial disease (PDCD). DCA is a well understood drug with a strong safety profile and my daughter has been on it for over 3 years. Losing access to DCA will have catastrophic effects on her quality of life. With such a terrible disease as PDCD, a drug that could even give her a relative decrease in daily pain and a few less hospital admissions each year would be worth it, but DCA has done that and so much